Access to care
Within the framework of our mission to improve the lives of persons living with severe chronic diseases world-wide, UCB is committed to spearheading innovative patient and family access programs, to invest in research and development and clinical study programs, and to foster partnerships with charity organizations that share our patient-commitment.
The Patient Support Programs include sponsorships, informative websites, mentoring and scholarships, and strengthening and enhancing the quality of life for those persons living with severe chronic diseases worldwide.
Continuous dialogue with patients, experts, policy makers, communities, employees, and suppliers creates the platform for sharing ideas on current and emerging disease insights, and builds a trusted environment where advocates and UCB may work together. Interpreting clinical data to better understand the needs of patients is illustrated by the UCB ‘Epilepsy Advocate, strength in numbers’, community, created in 2006, addressing unmet patient needs, offering access to the latest information and encouraging collaborations, among others.
The UCB ‘Epilepsy Advocate, strength in numbers’ community, created in 2006, addresses unmet patient needs, offers access to the latest information and, encourages collaborations, among others.
Some of the other initiatives were:
Rheumatology insight – Germany
An atypical, dynamic and innovative platform for rheumatologists attending the German Day of Rheumatology. Attendees learned from a non-medical expert who explained how a person living with rheumatoid arthritis should be treated.
The positive feedback from doctors confirms the value of our work and shows that the path towards a successful long-term partnership with rheumatologists is already well underway.
A rheumatology breakfast with true experts – Australia
At the Australian Rheumatology Association Annual Scientific Meeting UCB organized a breakfast symposium ‘The Patient will see you now!’. A panel of persons living with rheumatoid arthritis presented insights on their disease, their life journey as a patient, and focused on patient empowerment by providing rheumatologists with tools to better dialogue with their patients.
International Epilepsy Day – Turkey
‘Life with Epilepsy’ seminars, organized with the Turkish chapters of the International League Against Epilepsy and the International Bureau of Epilepsy, united 80 persons living with epilepsy, caregivers and other members of the epilepsy community and the public.
UCB colleagues reached out to the public by distributing over 6 000 epilepsy information brochures, in addition to letters, and over 900 posters to company physicians working at large organizations. At one of Istanbul’s biggest shopping malls, colleagues distributed over 1 000 brochures on epilepsy.
In addition, a UCB colleague from the Eastern part of Turkey organized an epilepsy seminar attended by 500 caregivers, family members and school teachers. During the symposium, heath care professionals and school teachers were informed on the definition of epilepsy, treatment approaches, types of seizures and first aid in epilepsy. The teachers showed great interest and had an opportunity to direct questions to the experts. The meeting revealed that participants considered only generalized seizures to be a symtom of epilepsy. This demonstrated that the general public requires additonal information on epilepsy, highlighting the added value of the seminar.
‘WeDoctor’ and ‘Carnation’ platform – China
The China Association of Health Promotion and Education, in association with UCB, launched a digital disease education platform, called ‘Carnation’, on WeChat, one of the most popular social media platforms in China. Through ‘Carnation’, patients learn about the disease, treatment options and nutrition. They can also search for epilepsy specialists, and attend online patient education and online consultations to interact with physicians. Several hospitals across the country established a unified partnership and within the first week of its launch, over 1 000 patients and caregivers were already followers.
Innovative Medicines Initiative 2 – Europe
The Innovative Medicines Initiative 2 is Europe’s largest public-private innovative platform aiming to accelerate development of better and safer medicine for patients. The projects, Precisesads (on the identification of common disease features of rare diseases) and Aetionomy (on the identification of underlying causes of Parkinson’s and Alzheimer’s diseases) are only two of the 31 projects where UCB is involved.
Epilepsy in school campaign – Spain
The school campaign ‘Living with Epilepsy’ that builds awareness on epilepsy in school communities was supported by colleagues in Spain and received support from football players of Atletico Madrid. This initiative was honored with the first prize of the EFPIA Patient Think Tank at the Health Collaboration Summit in Spain after a review of 300 health initiatives of pharmaceutical companies.