Access to care
Within the framework of our mission to improve the lives of people living with severe chronic diseases worldwide, UCB is committed to spearheading innovative patient and family access programs, to invest in research and development and clinical study programs, and to foster partnerships with charity organizations that share our patient-commitment.
The Patient Support Programs include sponsorships, informative websites, mentoring and scholarships, and strengthening and enhancing the quality of life for those people living with severe chronic diseases worldwide.
Continuous dialogue with patients, experts, policy makers, communities, employees, and suppliers creates the platform for sharing ideas on current and emerging disease insights, and builds a trusted environment where advocates and UCB may work together. Through Patient Engagement, UCB wants to maximize the creation of sustainable patient value for specific populations and support shaping the environment on health topics of shared interest. Engaging with patient advocates and patient groups, through thoughtful advocacy, will strengthen UCB and patients' voice positioning on important health issues for patients, UCB and the broader ecosystem.
Some of the other initiatives were:
Academic Engagement Night, United States
UCB Biosciences, Inc. in Raleigh-Durham (North Carolina) hosted its fourth annual Academic Engagement Night with approximately 100 undergraduate and graduate students from nine universities. The Academic Engagement Night enables sharing valuable insights with the next generation of bright scientists and clinicians eager to make a difference in science and healthcare. Students were able to:
- learn more about clinical research and drug development;
- understand core competencies needed to gain employment in this industry;
- recognize a sustainable and engaged organization; and
- build a network with mentors at various levels and disciplines at UCB.
Strengthening partnerships with universities who have top-rated science and healthcare programs will be paramount to UCB’s success as an organization.
UCB links with Super Bowl to tackle epilepsy stigma, U.S.
UCB’s patient-centered focus was demonstrated when UCB colleagues in the U.S. associated with the 51st annual NFL Super Bowl game (Houston). UCB’s Epilepsy Advocate program was featured in a two-page spread in the Official 2017 Super Bowl game program which was distributed at the event as well as sold by retailers around the country. To generate further impact and demonstrate UCB’s commitment to patients, UCB donated two game tickets, airfare and hotel accommodations to the Epilepsy Foundation of Georgia (EFGA) so that a person living with epilepsy had the opportunity to attend Super Bowl 51. Additionally, leading up to the big game, UCB launched the #tackleepilepsy social media campaign to drive awareness and combat the stigma associated with epilepsy. Participants were encouraged to take a picture and to share it on Facebook and Twitter.
The success of the social campaign allowed UCB to donate $26 000 to the Epilepsy Foundation of America.
World Osteoporosis Day
Osteoporosis and fragility fractures are a major public health concern. It is an underlying cause of chronic pain, long-term disability and premature death. Yet the condition remains severely underdiagnosed and undertreated.
October 20 marked an important day in the calendar for UCB – World Osteoporosis Day!
Organized by the International Osteoporosis Foundation (IOF), World Osteoporosis Day provided us the chance to show our vibrant support to UCB’s commitment to help create a world free of fragility fractures. By signing the IOF Global Patient Charter on iofbonehealth.org, over 690 UCB colleagues worldwide raised the voice of the patients living with osteoporosis and fragility fractures helping to make fracture prevention a health priority.
World Parkinson’s Day
The theme for this year’s awareness day focused on unity amongst the Global Parkinson’s community. To mark this occasion, people and organizations were encouraged to band behind the hashtag #UniteForParkinsons on Facebook, Twitter, Instagram or any other relevant social media channel – and to share messages about why they feel it is important to #UniteforParkinsons.
UCB is #United in our belief that by harnessing innovative technology and life sciences, the organization can make a real difference for people living with Parkinson’s. UCB shares the overall goal of the World Parkinson’s Day organizers – that, by coming together for Parkinson’s, we can spread the same message on one day all over the world.
Flagship Epilepsy Program, China
In alignment with the World Health Organization Resolution on Epilepsy, UCB China has conducted the Epilepsy Flagship Program in 2017 to answer the calling of the Resolution to increase the public awareness of epilepsy, particularly in primary and secondary schools, in order to help reduce misperceptions, stigmatization and discrimination of the people with epilepsy and their families.
Supported by Shanghai municipality Xu Hui education bureau, UCB China sponsored the Go to School Campaign on international epilepsy caring day in Shanghai East China University of Science and Technology affiliated primary school, which was hosted by the China Association Against Epilepsy (CAAE) and the Shanghai School Health Care Association. It enabled 100 students to become the first group of Epilepsy Care Ambassadors. 13 media agencies reported on this event, with five major cities displaying outdoor LED screens, and a total of over 800 000 social media hits recorded.
As part of the sustainable actions to increase public awareness of Epilepsy, UCB China signed an agreement with Shanghai Science and Technology Museum (SS™), to set up a three-year UCB Brain Science Education Special Fund. This fund supports the Human & Health Pavilion – Brain Science Hall in SS™, which ranked No. 7 in the world in 2016 with an annual audience of 3.5 million.